AUTISMO SEVERO, INTELIGENCIA Y CAPACIDAD INTELECTUAL

Definición de la RAE sobre la palabra: inteligencia.

(Del lat. intelligentĭa).

1. f. Capacidad de entender o comprender.

2. f. Capacidad de resolver problemas.

3. f. Conocimiento, comprensión, acto de entender.

4. f. Sentido en que se puede tomar una proposición, un dicho o una expresión.

5. f. Habilidad, destreza y experiencia.

Los grados de severidad en el autismo son algo que sigue en plena discusión, al respecto de qué indicadores son los que inciden en una mayor o menor severidad. Normalmente una mayor severidad se asocia a un mayor grado de dependencia de la persona.

Los aspectos derivados de conductas muy disruptivas y de compromiso intelectual suelen ser dos de los mayores ítems a considerar.

Por supuesto se pueden añadir otros aspectos que actúen de forma comórbida, la epilepsia suele ser uno de los más relacionados con las dificultades intelectuales.

Pero es importante considerar que la severidad no tiene porqué estar asociada a un déficit intelectual. Durante muchos años se ha afirmado que el 70/80 % de las personas con autismo tienen discapacidad intelectual asociada.

Hoy sabemos que esto es rotundamente falso. De hecho la evidencia actual tiende a decir justo lo contrario, y hoy se estima que entre un 20/25 % de las personas con autismo pueden tener una discapacidad intelectual asociada.

Y todo esto tiene que ver en cómo entendemos la inteligencia y en cómo se aborda la atención y la enseñanza a las personas con autismo, algo que en la última década está cambiando de forma radical.

La asociación autismo + discapacidad intelectual es otro de los múltiples mitos del autismo, y no se pretende en absoluto desmerecer bajo ningún concepto a las personas que tienen un compromiso intelectual (del tipo que sea), sino más bien intentar aclarar aspectos relativos al cómo un cambio de paradigma está cambiando muchas de las visiones establecidas, de forma que una nueva visión nos ayude a ser mucho más proactivos con las persona con autismo o con cualquier otra alteración del neurodesarrollo.

Debemos empezar a pensar que quizá lo que hasta ahora definíamos como la discapacidad intelectual del otro era más nuestra incapacidad intelectual a la hora de establecer patrones adecuados de aprendizaje o enseñanza.

En resumen, que ya es hora de que nos demos cuenta de que el compromiso intelectual que le complica la vida a muchas personas, quizá esté en nuestro cerebro, vestido de prejuicios o visiones erróneas.

Esto no pretende en ningún caso hacer desaparecer el hecho de que existan personas que presentan un compromiso intelectual.

Y que esto también se dé en personas que tienen autismo, o quizá, en personas que presentan un compromiso intelectual tal que afecta severamente a las áreas de comunicación y sociabilidad y que generan por tanto conductas de tipo autístico.

Lo que realmente se persigue es motivar un cambio en el modelo de pensamiento, en dejar de suspender de antemano a las personas que debido a su diversidad o diferencia son tratadas de forma inadecuada y se pone en duda de forma sostenida su capacidad de aprender.

Creo que es el momento de empezar a poner sobre la mesa la incapacidad de enseñar por encima de la incapacidad de aprender.

Obviamente no todos podemos tener mentes prodigiosas, pero eso no significa que se coarte la capacidad del individuo por el mero hecho de no mostrar un patrón socialmente aceptable en lo que a inteligencia se refiere.

Sobre inteligencia y autismo disponen de diversos artículos con mucha bibliografía que pueden consultar haciendo clic aquí.


Hoy para ilustrar esta propuesta veremos dos casos, uno muy conocido, el otro no tanto, pero que al final nos van a mostrar dos situaciones cuasi idénticas.

Una chica y un chico, ambos con diagnóstico de autismo, que no tienen comunicación verbal funcional, y a quienes se había encasillado en el grupo de discapacidad intelectual, pero que ¡oh! ambos demuestran que la discapacidad intelectual no era la de ellos.

Carly Fleischmann

Carly Fleischmann, fue diagnosticada con autismo severo, sin embargo un día demostró que su severidad no era intelectual, incluso aprendió a escribir sola, hoy mantiene un blog, escribe libros y es una defensora de los derechos de las personas con autismo, demostrando claramente lo que desde Autismo Diario venimos diciendo desde hace mucho, y es que autismo no tiene porque significar discapacidad intelectual.

Ethan

Ethan es un adolescente de 17 años con autismo y apraxia verbal. A la edad de 10, los “expertos” les decían que nunca podría leer, escribir o hacer matemáticas. Hoy, Ethan está haciendo matemáticas avanzadas incluyendo álgebra. Su comprensión de la lectura es increíble y él teclea 65 palabras por minuto. El vídeo dura 12 minutos, está en inglés y con textos en inglés, pero no es muy complicado de entender.

En el pasado se pretendía medir la capacidad intelectual de las personas con autismo por su capacidad de comunicación y expresión verbal, a pesar de que precisamente esa es una de las áreas que suelen estar afectadas en el autismo. Por tanto los porcentajes de discapacidad intelectual eran inmensos. Hoy vemos que no se medía la discapacidad intelectual sino la incapacidad del sistema de medición. Lamentablemente se condenó a una generación completa.

En la actualidad la visión está cambiando, desde familias a profesionales. Incluso a nivel de desarrollo verbal los avances están siendo espectaculares, pero aun falta por convencer a muchos profesionales y familiares de que NUNCA duden de las capacidades de un niño o joven, tener autismo no significa que no aprenda, significa que el maestro tiene ante sí un estupendo acicate y reto profesional, enseñar lo mismo pero de una forma diferente, y así, por el camino descubrirá que enseñar otras cosas de otra forma es tremendamente gratificante.

Immanuel Kant afirmó: “Se mide la inteligencia del individuo por la cantidad de incertidumbres que es capaz de soportar”.

Esto significa que la persona con autismo debe enfrentar una larga lista de incertidumbres y manejar una larga lista de situaciones incomprensibles, y decimos que tienen bajo cociente intelectual, mientras que todo tipo de profesionales son incapaces de enfrentarse a una sola incertidumbre y por tanto recortan y encasillan.

Este debe ser el cambio de concepto, no podemos restringir las posibilidades de alguien por culpa de nuestra incapacidad intelectual. Si una persona es incapaz de ver más allá de sus propias limitaciones intelectuales, no está por tanto autorizada a infringir un daño -posiblemente irreparable- a las posibilidades de otros.

Hagamos que la famosa frase de Wittgenstein “Los límites de mi lenguaje, representan los límites de mi mundo” se convierta en falsa. Expandamos visiones, hablemos de comunicación, de nuevas formas de enseñanza, de dejar de estigmatizar -y en el caso del autismo por partida doble- a las personas con la tan llevada discapacidad intelectual. Porque si nos dejamos llevar por la definición de la RAE sobre inteligencia, francamente, habría que dar tratamiento intensivo a una gran cantidad de personas.

Sobre todo a aquellos que no entienden ni comprenden, a quienes son incapaces de resolver los problemas que nos acucian, a quienes no parecen tener conocimiento, ni habilidades ni nada. A esos sí que habría que cuestionarlos, y no a quienes se les niegan las oportunidades.

FUENTE: AUTISMO DIARIO
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